My name is
Mark Wagner, founder of Special Bones. I
have
Osteogenesis Imperfecta (OI). My
condition is
termed
as Type I OI. This is the mildest form
of the disease. My dad had it, two of my
brothers have it, five nieces and
nephews who have it, and my two children
have it. There are now 13 people in my
family who have it. As far as we
know, we have the most members of one
extended family who have it.
Click on
this link to view the latest Wagner family tree:
Click here to view in Adobe
Over the years, my Mom kept count of how
many bones each of her kids broke. When she
died in 2000, she had my brother Bob with
127, my brother David with 60, and me with
87. My Mom took a lot of pictures when we
were young to document our lives every time
we broke a bone. On the back of each picture
she wrote information about the picture,
such as how we broke and on what date.
There’s a lot of history in these pictures.
I am currently in the process of writing a
book about my life with Brittle Bones and
how I had to cope with it, especially when
your children have the same disease you grew
up with.
Click on the
images below to view Brittle Bones through
the eyes of my MOM.
Bisphosphonates
My kids received
Pamindronate treatments from
University
Hospitals Health System and the
Rainbow Babies & Children's Hospital
from 2002 to 2004.
-------------------------------------------------------
Forteo
In March
of 2012 I started the Foteo program through
the
Cleveland Clinic.
