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Elizabeth in a cast with her doll

SPECIAL BONES - 206 Reasons to Care OI Care

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My name is Mark Wagner, founder of Special Bones. I have Osteogenesis Imperfecta (OI). My condition is termed as Type I OI. This is the mildest form of the disease. My dad had it, two of my brothers have it, five nieces and nephews who have it, and my two children have it. There are now 13 people in my family who have it. As far as we know, we have the most members of one extended family who have it.

Click on this link to view the latest Wagner family tree: Click here to view in Adobe

Over the years, my Mom kept count of how many bones each of her kids broke. When she died in 2000, she had my brother Bob with 127, my brother David with 60, and me with 87. My Mom took a lot of pictures when we were young to document our lives every time we broke a bone. On the back of each picture she wrote information about the picture, such as how we broke and on what date. There’s a lot of history in these pictures. I am currently in the process of writing a book about my life with Brittle Bones and how I had to cope with it, especially when your children have the same disease you grew up with.

Click on the images below to view Brittle Bones through the eyes of my MOM.

Bob and Mark in tractions Notes 1 Notes 2 Notes 3

My kids received Pamindronate treatments from University Hospitals Health System and the Rainbow Babies & Children's Hospital from 2002 to 2004.


In March of 2012 I started the Foteo program through the Cleveland Clinic.


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